Late on posting this experience, maybe because I am exhausted…. getting ready to balance Schuyler starting school, soccer practices & work deadlines… even though I have really paced myself and everyone is so understanding, the treatments are starting to wear on me. I love the time getting Schuyler ready for school in the morning – although I am the drill sargeant mommy pushing to get him out of bed and ready…. and going to soccer is such a joy, watching him play and have fun with the friends he has grown to get to know and connect with here in Belchertown. I love my life. I love my community. I love my family. I am SO blessed.
Vitals: (all good)
117/60 – BP — NORMAL
11.2 Blood Oxygen Levels (still good)
141 lbs (although I got down to 137 on our scale this week! A little on the skinny side for me)
63 pulse
So RCHOP #3 was a quickie (or maybe just felt like it because I slept through it!) — they were able to get the drugs into me faster because I had no reactions the first time. Our Dr. appointment was with Dr. Rockwell, with Dr. Mullally out of town on vacation. She is awesome too….. we love this place — and would recommend it to anyone faced with a cancer diagnosis. The office is beautifully decorated, comfortable and relaxing. The docs are #1! Dr. Mullally is just such a real person, smart, dedicated, caring and knowledgeble. At the same time keeps you on target and is so encouraging. We couldn’t be happier — crazy to say, when faced with cancer — the sanctity of having a great doctor behind you is SO important.
Treatment started with some Benedryl which made me drowsy and blurry — so I couldn’t work or blog or think for that matter. Next thing I knew I was out! Sleeping like a baby in the chair! I haven’t been sleeping well for various reasons, so maybe I really needed it this time! Once awake I got to my Itunes, and my farming and a little work too. 🙂 I take it all in small bites. My neck gets cramped up when I am at the computer too much or I would be here more 🙂 I need Karin for a massage and hopefully next week we can get that together! 🙂
Before you know it it was over – 3 pm and I am out the door. The second day is the shot that has some latent side effects and we are working with Aleve & Tylenol to keep the pain away. I had all my appointments and to do list ready. Managing the care and the multiple doctors and scans and bloodwork for the next couple weeks is a job in itself. I have a repeat PET scan to see where we are with getting rid of this cancer — can’t wait to see those results! Health insurance has denied our need to go to Mass General so we have been spending time with Dr. Mullally to work with his doctor contacts at Bay State to arrange my next Methatrexate treatment. It will be inpatient and we need to set up time to consult with Dr. Mertens at Baystate Cancer Care. We are happy that we don’t have to switch all our care to Baystate and can stay with Dr. Mullally — that was a huge concern for us! Stress on so many levels getting this all together. But we are “on the road” so to speak to getting it all done and…
Photo above: Steve is so incredible. At my side every step of the way, fueled with snacks, water & coffee!
