Eek— so did you ever want to know what it would feel like to lose your hair? I didn’t. Never even crossed my mind. And I am still partially in denial that I can go through this without crazy side effects… and my long hair remains, and I brush it every day. I love my long hair. I love to curl it and get all pretty when we go out on “date nights” and when we have company or go out. Hair is such a huge part of how you feel about yourself and I love going to the hairdresser. It is actually kind of crazy, how I really searched for a hairdresser here in Western Mass after leaving New Hampshire, because I loved Amber so much. She made me feel like a queen every time. I didn’t find that here for a while, until I went to Tranquility Day Spa in Florence, MA — Maria is her name — she is amazing and I really like going to her for a cut. I feel like a million bucks!
So back to shedding — last night it started, long strands of my hair started coming out of my head after my shower. It is really horrible and sad. Judy said it could be painful according to others she has talked too. Well it is. Psychologically painful that is. I brush and it comes out, strands at a time… I kept thinking I need to go to get a hair cut this week and cut 8 inches to be able to send to Pantene Great Lengths program where they make wigs for kids going through chemotherapy. I would really like to do that — 8 inches is a lot, but it is just awful to be pulling out long strands of hair and feeling them on my back and picking them up all over. UGH. Oakley is infamous for the immense amounts of “hair clouds” of yellow lab hair he leaves all over the house. We could surely make another dog with all that hair. Now its me…. my hair….. eeks.
So – off to the hairdresser. Cheryl Nina said she may be able to help and give me an “emergency cut” — which is what I need right now. Hope that wig comes in soon — otherwise it is going to be a hat if I see any spots. 🙁
The other thing that is really bothering me right now is my taste buds. My mouth feels burnt. Nothing really tastes that good. I eat for fuel. I have lost more than 6 pounds to date since diagnosis. I can’t drink wine or any kind of alcohol (I keep trying and it tastes so horrible and gives me HUGE heartburn and a rotting feeling in my gut). Sad. I am such a wino (love good wine, wine tastings and visiting vineyards). My friends are helping and are having drinks for me. Comment on your favorite wine if you can! 🙂
I can’t eat anything with pepper, or anything too hot (coffee has to cool down – but I can still drink coffee). No red onions or fresh garlic. ALL of it too spicy. So – I starve. Kidding. I have been drinking protein shakes and bread and a very plain, bland diet. Boring. Oh well. Just thought I would share. 🙂
The good thing is that I am still running and running pretty strong (maybe not my best, but not so bad). I am trying to stay on the Training Peaks plan and ran 18 miles today. I am a little tired, but boy oh boy it felt great to get it in! I have put my site out there hoping people will sponsor me and make a donation to ACS for my Determination efforts in Chicago. The date is 10/10/10 —- which is Schuyler’s birthday — and really very cool date for the marathon this year. Kristin, who I mentioned earlier has a 10,000 goal. Not sure I can do that, but maybe $5000 and that will make my Determination donations in the past 1.5 years up to 10K? Please sponsor me — any donation counts and is truly appreciated! 🙂
Cara Turano (mentioned earlier) from Boston Determination is going to pace me (she can be with me in the Elite corral — yes I have an elite number because of my past times in the marathon this year — very cool) and we are going in costume! I have asked Laurie, my sister to make us Batgirl and Wonder Woman costumes. It will be a hoot! It really keeps me motivated and so happy to run. I ran 2 towns, 10 streets, and listened to 20 songs…. The bike path was full of active people enjoying the day. 🙂
Hope you all are enjoying this weekend! It is beautiful here. Get out there and enjoy life! Every minute counts! Say a prayer for me and my family as well as anyone else you know going through a life changing illness — it isn’t always easy. God is truly watching over all of us. Photo below was taken in Northampton.
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